June 4, 2012

Happy Re-birthday!! 3 years ago today Cody received his stem cells. We are very grateful for the donor. Amazing!! I continue to pray each day and am thankful for each day we have. Stay strong, my boy! I love you!!

June 3, 2012 ...3 years ago

Three years ago tomorrow was a huge step in Cody's battle with leukemia.  It was three years ago that he received his stem cell transplant.  Time sure flies.  We went to dinner tonight and talked about the process.  Just last week he had something that was a muscle strain but caused him a lot of scare. This is our life.  When something out of the ordinary occurs, we think the worse. It is something we will live with and Cody mentioned it tonight at dinner.  He is doing well, the feeding tube is gone.  He is doing his best to eat and gain the weight he needs to.  He wakes up with a smile on his face and he is so upbeat and happy with life!  He continues to amaze me each day.  We have an amazing relationship and I will not trade that for anything.  We woke up around 1am last night and did a quick video chat with Casey.  We were both so tired but so proud of his promotion!  He is a sergeant now!!!  Another strong soul but in a totally different way.  I could be happier!
Sending special prayers to a good friend's niece as she begins her battle with bone cancer.  She is at Sloan and will be under the best care.  Please add Meghan to your prayers.  Thank you.

May 14, 2012

Happy Belated Mother's Day!!
I had a nice day with Cody and then did a skype session with Casey.  It made my day!!
Today marks a huge accomplishment.  Cody finished his first year of college!!  HUGE, I know!  I could not be more proud.  Tomorrow he heads to Sloan via the train and is hopefully getting his feeding tube out.  He is quite attached to it but it is time for sure.  I know the drs will help with that.  He is meeting his dad there and is staying overnight with his uncle Jim too.  I am so proud of this tough year of schooling he has endured.  He continues to amaze me each and every day.  He will continue with his internship with the Islanders and is beginning to lead somewhat of a normal life. It is about time.  I love you both, my boys!!  XOXOXOX

May 14, 2012

So Happy Belated Mother's Day!! I had a good day with Cody which ended in a short skype session with Casey.  It made my day!!
Today marks a huge accomplishment!! Cody finished his first year of college.  I could not be more proud!   It was a tough year but he did it!
Tomorrow is Cody's visit at Sloan.  He will most likely get his feeding tube out.  He is taking the train in and is meeting his dad and uncle.  I cannot wait to get the call saying it is out!  Keeping fingers crossed.
Please say a prayer for Denali.  He is a 10 yr old in Fl battling pancreatic cancer and is not doing so well.
Thank you.
That is Cody and I on Mother's Day...not the best but having a good day.
The pic of Casey is via skype..miss him!!

Have a great month everyone.

April 12, 2012

SO things are good! This past week (we are off from school) Cody had a physical at a regular dr out here. We need to get a regular dr for him so that he can get medical attention when he needs it for things like strep, etc. We no longer need to rush to Sloan. It is a great feeling! Yesterday we spent the day with 4 drs in NYC at 4 locations in NYC. Very long and exhausting day. Cody saw the doctor, still a MSKCC dr, that will follow him yearly for long term issues. It was good to know we had graduated in a sense. He had some concerns and spoke to the dr about them. We will see this dr in a year. Then we went to an endocrinologist. This is basically a dr that deals with hormones and also things like calcium and bone loss. Cody has some bone loss but hopefully this can regrow. Amazing right? He will watch Cody for any changes or imbalances on any levels. Then we went back to our bone marrow transplant team and we are working toward taking out the feeding tube!! Cody is attached to it in more ways than one. He is kinda dependent on it so we are working toward decreasing the feeds. He smiled even though I know he is very nervous. He can do it. Then we went to the kidney specialist to check for that level of protein in his urine. All is hopefully good there too!

Cody spent Easter in Canada, well sorta. Not much of an Easter celebration so he came home to a basket from me! I miss him when he is not here.

Speaking of missing, Casey is away now and we did get to Skype with him which always makes me smile! He got a promotion so he is feeling pretty good too. I pray for his continued safety and is speedy return to his home!

April 3, 2012

Wow...time sure flies! I am proud to report that even though Cody got strep, we have not had to so to MSKCC the entire month of March. Big improvement!

Busy here with Cody's 5 classes and projects. He is doing ok but needs a lot of help! It is tough on both of us.

We are finally doing a few home improvements which is always fun.

We go to MSKCC on the 11th. I am really hoping they can convince Cody to take his feeding tube out. He is getting one can of insure and a little water. He is definitely eating more and pretty normally. He is kinda attached to it, no pun intended and worries.

Cody is still dealing with anxiety which causes him to get upset and vomit at times. I really think it is anxiety related. This too, shall pass.

Cody is heading to Canada for this weekend of Easter. I really miss him when he is gone.

I know he is moving ahead...today he went with 'friends' from Dowling and got breakfast. I was so happy!!! Big step again.

We got to see Cody's player last week after the Islanders played the Penguins. He is a Penguin now. It was so good to see him and Cody still gets star struck and forgets how to talk. It is so cute!!

Happy Passover and Happy Easter to all my friends that read this. And to my teacher peeps, enjoy the vacation!!

PS. Keep Casey in your prayers...

March 10, 2012

It has been about a month since I wrote..things are good!!

We had a nice visit with Casey and Nicole. The three of them went skiing in Canada and visited their dad. We had some good laughs here and the visit was too short. Not looking forward to hearing that Casey is leaving. He is going overseas again.

Cody just came down with strep. We were actually not sure what to do when he spiked a fever. So we called Sloan and then were directed to go to a dr out there. We went to PM Pediatrics which is wonderful. I do need to find him a dr out there now. He has a functioning immune system so we are good to go out there. I have an upper respiratory virus and am under the weather. I got the stomach virus the day the Feb vacation started and now this. I never get sick!! I think this weather is too blame and too many are walking around sick! I had to miss Friday which is so unlike me. I am exhausted but should be good by Monday, hoping anyway!

So next month we go back to Sloan on the 11th and then we meet with the long term follow up dr. Big day of appts for us. Looking forward to some nice Spring time weather too!