SO things are good! This past week (we are off from school) Cody had a physical at a regular dr out here. We need to get a regular dr for him so that he can get medical attention when he needs it for things like strep, etc. We no longer need to rush to Sloan. It is a great feeling! Yesterday we spent the day with 4 drs in NYC at 4 locations in NYC. Very long and exhausting day. Cody saw the doctor, still a MSKCC dr, that will follow him yearly for long term issues. It was good to know we had graduated in a sense. He had some concerns and spoke to the dr about them. We will see this dr in a year. Then we went to an endocrinologist. This is basically a dr that deals with hormones and also things like calcium and bone loss. Cody has some bone loss but hopefully this can regrow. Amazing right? He will watch Cody for any changes or imbalances on any levels. Then we went back to our bone marrow transplant team and we are working toward taking out the feeding tube!! Cody is attached to it in more ways than one. He is kinda dependent on it so we are working toward decreasing the feeds. He smiled even though I know he is very nervous. He can do it. Then we went to the kidney specialist to check for that level of protein in his urine. All is hopefully good there too!
Cody spent Easter in Canada, well sorta. Not much of an Easter celebration so he came home to a basket from me! I miss him when he is not here.
Speaking of missing, Casey is away now and we did get to Skype with him which always makes me smile! He got a promotion so he is feeling pretty good too. I pray for his continued safety and is speedy return to his home!
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