April 12, 2012

SO things are good! This past week (we are off from school) Cody had a physical at a regular dr out here. We need to get a regular dr for him so that he can get medical attention when he needs it for things like strep, etc. We no longer need to rush to Sloan. It is a great feeling! Yesterday we spent the day with 4 drs in NYC at 4 locations in NYC. Very long and exhausting day. Cody saw the doctor, still a MSKCC dr, that will follow him yearly for long term issues. It was good to know we had graduated in a sense. He had some concerns and spoke to the dr about them. We will see this dr in a year. Then we went to an endocrinologist. This is basically a dr that deals with hormones and also things like calcium and bone loss. Cody has some bone loss but hopefully this can regrow. Amazing right? He will watch Cody for any changes or imbalances on any levels. Then we went back to our bone marrow transplant team and we are working toward taking out the feeding tube!! Cody is attached to it in more ways than one. He is kinda dependent on it so we are working toward decreasing the feeds. He smiled even though I know he is very nervous. He can do it. Then we went to the kidney specialist to check for that level of protein in his urine. All is hopefully good there too!

Cody spent Easter in Canada, well sorta. Not much of an Easter celebration so he came home to a basket from me! I miss him when he is not here.

Speaking of missing, Casey is away now and we did get to Skype with him which always makes me smile! He got a promotion so he is feeling pretty good too. I pray for his continued safety and is speedy return to his home!

April 3, 2012

Wow...time sure flies! I am proud to report that even though Cody got strep, we have not had to so to MSKCC the entire month of March. Big improvement!

Busy here with Cody's 5 classes and projects. He is doing ok but needs a lot of help! It is tough on both of us.

We are finally doing a few home improvements which is always fun.

We go to MSKCC on the 11th. I am really hoping they can convince Cody to take his feeding tube out. He is getting one can of insure and a little water. He is definitely eating more and pretty normally. He is kinda attached to it, no pun intended and worries.

Cody is still dealing with anxiety which causes him to get upset and vomit at times. I really think it is anxiety related. This too, shall pass.

Cody is heading to Canada for this weekend of Easter. I really miss him when he is gone.

I know he is moving ahead...today he went with 'friends' from Dowling and got breakfast. I was so happy!!! Big step again.

We got to see Cody's player last week after the Islanders played the Penguins. He is a Penguin now. It was so good to see him and Cody still gets star struck and forgets how to talk. It is so cute!!

Happy Passover and Happy Easter to all my friends that read this. And to my teacher peeps, enjoy the vacation!!

PS. Keep Casey in your prayers...

March 10, 2012

It has been about a month since I wrote..things are good!!

We had a nice visit with Casey and Nicole. The three of them went skiing in Canada and visited their dad. We had some good laughs here and the visit was too short. Not looking forward to hearing that Casey is leaving. He is going overseas again.

Cody just came down with strep. We were actually not sure what to do when he spiked a fever. So we called Sloan and then were directed to go to a dr out there. We went to PM Pediatrics which is wonderful. I do need to find him a dr out there now. He has a functioning immune system so we are good to go out there. I have an upper respiratory virus and am under the weather. I got the stomach virus the day the Feb vacation started and now this. I never get sick!! I think this weather is too blame and too many are walking around sick! I had to miss Friday which is so unlike me. I am exhausted but should be good by Monday, hoping anyway!

So next month we go back to Sloan on the 11th and then we meet with the long term follow up dr. Big day of appts for us. Looking forward to some nice Spring time weather too!

February 7, 2012

Good morning.

So Cody is off for another semester. I pray that he can do this. I know he can. He was anxious that first day but that was it. He does have a lot of work to do but with my help, he will do it.

He seems so happy and that makes me happy!

We are anxiously awaiting Casey and Nicole's visit this month. Casey will be deployed again and I am hoping this is the last time. He is there for 3 months. Cody and I are planning a trip to FL this summer and we will get to see him there. I miss him already and wish it was over.

Nothing new to report which is good.

Extra prayers needed for the Botolino family in FL. Their 10 year old is battling liver and pancreatic cancer and not doing so well. Just not fair.

Have a good day everyone!

January 29, 2012

Well, hard to believe that January is almost over. I guess it kinda is.

Cody has recovered completely from RSV, thank goodness and starts back to school tomorrow! He is anxious. We took a ride yesterday so he could find his way around and buy the books...ugh!

He feels better. He is taking 5 classes since he took January off to work the hockey games. He was able to work a few but was sick for most of it. Funny how things work out.

So he is sleeping in today and we will organize his stuff so that he is all set for tomorrow.

We are excited about Casey and Nicole's upcoming visit at the end of February.

My brother and his family usually come to NY around the Feb break but they are not this year. It already seems weird without them. But they always hope it snows when they are here so looks like they made the right choice with the winter we are having.

Hope everyone had a nice start to the new year!!

PS. really love this pic of my handsome boys!

January 20, 2011

So here comes our first snow this year. I would like a little.

Cody is returning tonight from a short visit to Canada. He did not do much there but at least he was able to go away and fly on his own. I missed him for sure.

He has recovered from his virus and is back to eating on his own and hopefully gaining weight. We are trying to get a follow up appt with the new long term drs. For some reason, they really want him to see the long term dr. It is really hard scheduling it.

He is back working with the Islanders which he LOVES. Casey was away this week doing training and he is due back home to his wife this weekend. He and Nicole are coming on the 24th so it will be nice to have them here too.

Enjoy the weekend and the snow, my LIer's.

January 16, 2011

Monday-Martin Luther King Jr day.

Well, we are back on track. Cody is better and worked the game on Friday and all day today. He is pooped but he did it! Not happy that he did not eat today but will catch up tonight with the feeding tube. So glad he is feeling better.

He is going to Canada on Wednesday to see his dad. He will be returning Friday night. Not a long visit which I am glad about. This is the first time he is flying alone since he has been sick. He will be fine. I will be at work so that will keep me busy.

Hope everyone enjoyed their 3 day weekend.