March 6, 2010

Saturday-Today there was no fever. VERY happy about that. Cody got out this morning and just sat in the backyard in the sun for a little while. It was nice and warm. We left for the hockey game around 1 and had a great time. The Islanders did not win but it was a good game to watch. And of course, we got to go downstairs post game and see the players, mainly Richard. Cody knows a lot of the PR people there and he calls out to them when they see him. It makes him feel so special. He really feels comfortable there and loves seeing the team. We get to see other players while we are waiting for Richard and some of them come up to him and say hi and ask him how he is. Then we get to go down the hall a little ways and 'hang' with Richard. He is a super nice guy and so personable. Cody wore one of the sweatshirts he gave him to the game and he noticed it right away. He always wears Cody's bracelet too. We are so lucky to have Ann, our connection girl and she always hooks us up and we get the good seats. Thanks, Ann! We got home and we were both pooped. It was a perfect day! P.S. We got to meet Sparky before and after the costume. He is a good guy too!

March 5, 2010

Friday- Well, I guess I am forgetting to click 'save' because this is the 2nd time for this entry too. Well, Cody did well and still ran the 99 temp today. Dr said it could be from the steroid tapering that we are doing. Let's hope so. He feels good and ate 3 eggs today. I will take that.

We hung around here most of the day and just relaxed. We are looking forward to the Islanders game tomorrow. Sorry this is short but I already wrote it once....Enjoy the sun!!

Oh yeah I was saying that Nicole moved in the new apartment. Her parents are there to help. I know she misses Casey and we do too!!!

Have a good weekend everyone!

March 4, 2010

Thursday-Hmm, I am pretty sure I wrote for today but not sure where it went so here goes from what I can remember.

Cody worked really hard today with 2 tutors. He did math an english and got lots of homework. He was feeling pretty good but a tad bit tired. He ate today and did well.

Well, around 5 pm I took his temp and lo and behold it was 99.9. So I make the call and off we go to Sloan On the ride there, I touched his head several times. I am pretty good at temps manually now. His head will probably be bruised from all my touches. He did not feel warm at all and he quoted me "cool as a cucumber". We get there and we blood cultures just in case. I was really glad they did not start pumping him full of antibiotics. His counts were good and no fever was recorded there. So Cody made a new friend, Dr. B because he was the one that ultimately sent us home. First time ever. Cody and I were much more calm this time as we really had nothing to worry about. The stools are good and showing no indications of blood and the food are staying in. Got home late but got to sleep in our own beds!

march3, 2010

Wednesday-Today was another good day. We woke up to the rain or was it snow, or was it sleet or was it freezing rain? Oh enough already. Cody visited with his dad for about an hour and I went to the gym. Trying to get back into it. It sure is hard when you do not go. I also got a slice of pizza that I have been craving. Cody had his social studies tutor and then he went to physical therapy. He did pretty well once again. Funny though, they take his blood pressure there and it was high. The cute girl takes it for him. I think he likes all the girls there. We took in a few minutes and it was fine. So cute.

Today I got a letter from the sperm bank. The day after we got Cody's formal diagnosis he had a big decision to make. After the chemo and later after the radiation, we know that he will not be able to father kids. So after he called his brother he decided to try and was able to make a donation. We have it saved in a sperm bank. So this letter said that as of Dec 16, his one year had expired and if we did not pay for the next year's storage, it would be destroyed within 30 days. Well, this was the one thing Tim was supposed to take care of and guess what? He forgot and he also forgot a blood test they need. SO before he left with his lovely wife and stepsons to go to the city for a show, he had to go to the storage place and pay and get me the blood work that is needed. Later I got an email from the dr. Cody emailed her and asked her if there was a chance that his kids would have cancer. I was speechless. She cc'd me in the email because she wanted me to see what he asked. I am so proud of him and he is in control. He has questions and he knows where to go for answers. He is so mature and has learned so much and has real concerns and questions.

Today he tried scrambled eggs. Let's hope all stays nice and normal. He is feeling really good and I pray it stays this way.

Saturday we have tix for the Islanders game. I know he cannot wait to go so I really hope he stays well. Keeping my fingers and toes crossed...nite all

march 2, 2010

Tuesday-We did not sleep too well last night. Not sure why but that made for a tiring day. We hit traffic this morning on our journey to Sloan. Cody had to get the IV infusion for pneumonia and he gets premedicated for it as it makes him nauseous. So with that med, he was knocked out. All went well with the drs and they seem pretty happy with his progress. They keep telling him that this will not be forever. He asked his questions, mainly about food and we will try eggs in the morning. The blood sugars seem to be under control now too, thank goodness. We asked about being able to travel at the end of April to GA for Casey's graduation. It looks promising. I have to do some research to find area hospitals and see where to stay to break the trip up. It is 14 hours by car and he cannot fly yet. I do hope we can make it but if he is not up to it, we will go visit them in June. I like to give Cody alternatives so he knows it is not the only opportunity to visit. He really wants to see his brother and it breaks my heart when he tells me he misses him. It would be a nice trip for both of us either way. And maybe we will do it both times.

I made my decision to not return to work until September. I had a long talk with my dad. If anyone understands this, it is him. He hears from me on a daily basis and knows how it is day to day even though he cannot be here. Emotionally we need some time and obviously physically. It would not be fair to anyone, my students, Cody or myself. There is no way I can go from leaving him for an hour or two to 40 hours a week. It would only be for 3 months and it would be so stressful. His dad is not reliable and it just would be too much. I spoke to the union president and he will relay it to CO and we will go from there. I did let my principal and asst principal know so I do feel better about that. I also have lots to do to get Cody ready for the regents and finish school. Not sure if he will be able to go back in Spetember as a senior but we are working on it. He knows this. I know he is not happy but I think he will be ok. Not sure yet but we are prepared.

So with that, have a great day....be in touch tomorrow

march 1, 2010

Monday-A great and busy day! The blood sugars seem to be leveling out. I hope they stay that way tonight. We went to do errands today then took a walk with the dogs. It was so nice out. Cody has his spanish tutor and did really well. Then he went to physical therapy and did well there too. He just keeps getting better and I feel like this is his time...to improve!!

He hung out here tonight with his dad and stepbrothers and played Monopoly. As for me, I watched (still watching) The Bachelor finale. I know, I know, but it takes my mind off this for a little while. Maybe I should be the next Bachelorette. That is why Cody's night nurse says. HA!

I hope we have lots more days of Cody feeling so well and I feel we are headed there...FINALLY!

Enjoy the sun!!

february 28, 2009

Sunday-Well, today was a great day. We started off not so good with the blood sugars but got them in line this afternoon. We will talk on Tuesday to see if there is anything else we can do to make this better. I am putting less insulin in his TPN (IV nutrition) tonight so that should help from the dipping numbers we got this morning. Cody spent the early afternoon with his dad and I did a few errands. I even went and got a manicure! The plan was to go to Dave and Buster's to watch the hockey game and Cody went there with his dad. I ended up going because his blood sugar dipped and he needed insulin. My plans got cut for sure but the day was good as far as his stool go. He had a pretty regular day as far as that goes. Thank goodness it is working.

I did find out that Cody ate candy yesterday while I ran to the store. He did not admit it until he found the wrappers and he remembered. I felt bad and I know the steroids are making him nutty with food so we talked and hopefully he will not do that again. His sugars are out of whack so this was not a good thing for him to be eating.

I am happy that he is feeling better and stronger. I pray this path continues. The weather has to get nicer as he gets better. It just goes hand in hand.

Casey is off for his 3 week no contact training period. I got a text this morning before he turned his phone in or off. Nicole is moving to their new apartment and her parents are helping her. I am proud of her too.

I hope everyone has a good week!