Day 131 October 13, 2009

Tuesday-We had a bit of a rough night with diarrhea and then a bout of vomiting. The vomiting is from his thrush infection first causing him to gag then vomit. We left for the city around 9 and as soon as we got on the LIE we turned around to come home to use the bathroom. We stopped one other time on the way and it made the trip feel like forever. We waiting a long time today there too. We have seen this young man there a few times and he and Cody talked. He is there for his 2nd transplant. His brother was there today and he is the donor. So we met the whole family. He and Cody exchanged facebook invites and maybe they will connect with each other. He is 23 but still going through it just like Cody.

We had a long talk today about Cody's not eating and the idea of a feeding tube came up. He is scheduled for one on Nov. 9th but hoping this will not have to happen. He is starting another anti fungal tomorrow that will hopefully help his yucky mouth and then help him to eat. We tried some Insure drink tonight and that was no good. He did have a little of a smoothie I made with fruit and ice cream. We are going to try hard and get him to eating. Then if we are not successful, we will do the feeding tube in his stomach. He is not happy about it but he is wasting away as far as weight goes. We will try harder.

He was upset this evening and then we had to try to do homework which made it worse. I do not know how I could be working through this. I started his meds early tonight so I can go to bed soon too. We need to get a break and move ahead! Soon, I hope....