Happy Good Friday!
So Cody started back soccer!! He is working with a trainer at International Soccer Academy. He lasted for 3 weeks and sprained his ankle. He took some time off and went back this week and did a last kick and got a groin strain. So he is taking it easy and going to physical therapy. He is planting peppers and still enjoying his time with the Islanders. He is doing well in school and it is hard to believe he will be finishing his 2nd year.
Healthwise, he is great! He is back on track and eating more than ever. He has more stamina and feels good. The bouts of nausea have not occurred for some time now. He is going to the long term team this week so I will report back on that. He will also be going to his kidney specialist and hopefully decreasing his medication that he is on now. We need to get him off his anti depressants and move on!!
We are keeping tabs on Casey, as he is overseas again. We get to chat and Skype with him which makes me happy. We are planning on a trip at the end of June and are all connecting in FL. It will be nice to be all together again.
Happy spring to everyone!
Friday, March 29, 2013
Wednesday, March 20, 2013
March 20, 2013
Wow, it is the first day of Spring! We have been very busy and Cody feels great! He has started working with a soccer trainer and LOVES it. His comment was: I felt nervous when I got there but once I touch the ball, I knew I was back. So cute and so touching. He never ceases to amaze me.
We spent the day with a recording studio and they put together a promotional clip for Contractors For Kids. It is awesome. We have gotten amazing feedback and I hope it helps them with some funding.
Cody is back doing some hockey games and is almost finished with his 2nd year of school. I am so proud of him.
Casey is overseas and we worry daily. Nicole was here visiting so we enjoyed some time with her. We are all planning a trip for the end of June to be together at my dad's and brothers. I am looking forward to that!
I pray for our lives to continue this way and only get better. Our friend, Meg, is finished with chemo and we pray she is on her road to recovery. Matisse is in the maintenance phase of his treatment and is doing well too! On a sad note, we pray for the Bellero's who lost their son in a car accident. He was just 20.
Thank you for reading and keeping us in your prayers. XO
Here is the video: http://www.youtube.com/watch?v=z8IkdXmWwdA
We spent the day with a recording studio and they put together a promotional clip for Contractors For Kids. It is awesome. We have gotten amazing feedback and I hope it helps them with some funding.
Cody is back doing some hockey games and is almost finished with his 2nd year of school. I am so proud of him.
Casey is overseas and we worry daily. Nicole was here visiting so we enjoyed some time with her. We are all planning a trip for the end of June to be together at my dad's and brothers. I am looking forward to that!
I pray for our lives to continue this way and only get better. Our friend, Meg, is finished with chemo and we pray she is on her road to recovery. Matisse is in the maintenance phase of his treatment and is doing well too! On a sad note, we pray for the Bellero's who lost their son in a car accident. He was just 20.
Thank you for reading and keeping us in your prayers. XO
Here is the video: http://www.youtube.com/watch?v=z8IkdXmWwdA
Sunday, January 27, 2013
January 27, 2013
Good morning. I cannot believe that this week February begins. Crazy!
So it has been quiet here which is always a GREAT thing. Cody goes back to school tomorrow for the 2nd part of his sophomore year. He is looking forward to it because he knows it is closer to getting finished. He also signed up for soccer training. He is so excited! I think this is the one thing he has missed the most. Matter of fact, I know it is. He will be training with a coach and one other kid. He starts Feb 12. He has asked that I do not go and I can't anyway. I have started seeing a therapist to help me get through my tough days. I worry about Cody, non stop. I know that will not ever go away, this is what moms do but I know it is annoying to him. I am waiting to hear that Casey is deploying, any day now. That is another huge worry too. I am so looking forward to our cruise this summer when we can all be together and have some fun and relax!!
This year, I have focused on ways to give back to those great foundations that have helped us along the way. The one that is close is Contractors for Kids. I was happy to be asked to speak at one of their dinner events a few weeks ago. I was nervous but was honored to do it. Cody is such an inspiration to all who are battling. We met another family there and will add them to our prayers.
We continue to pray for those we know battling this disease. Many prayers to our friend's niece, Meg. She is battling a rare bone cancer and going through some tough chemo now. Stay strong, Meg!
Thanks for reading.
So it has been quiet here which is always a GREAT thing. Cody goes back to school tomorrow for the 2nd part of his sophomore year. He is looking forward to it because he knows it is closer to getting finished. He also signed up for soccer training. He is so excited! I think this is the one thing he has missed the most. Matter of fact, I know it is. He will be training with a coach and one other kid. He starts Feb 12. He has asked that I do not go and I can't anyway. I have started seeing a therapist to help me get through my tough days. I worry about Cody, non stop. I know that will not ever go away, this is what moms do but I know it is annoying to him. I am waiting to hear that Casey is deploying, any day now. That is another huge worry too. I am so looking forward to our cruise this summer when we can all be together and have some fun and relax!!
This year, I have focused on ways to give back to those great foundations that have helped us along the way. The one that is close is Contractors for Kids. I was happy to be asked to speak at one of their dinner events a few weeks ago. I was nervous but was honored to do it. Cody is such an inspiration to all who are battling. We met another family there and will add them to our prayers.
We continue to pray for those we know battling this disease. Many prayers to our friend's niece, Meg. She is battling a rare bone cancer and going through some tough chemo now. Stay strong, Meg!
Thanks for reading.
Monday, December 31, 2012
Dec. 31, 2012
Happy New Year. As I sit here alone, my choice basically, I reflect back and really am thankful for what I have. (Cody is in Canada visiting his dad and Casey is in GA.) Cancer changes life in every way and it will always be different. I know that I have a lot to overcome but each days gets easier. I do not constantly yell at Cody to drink anymore, for fear of dehydration which would land us back in the hospital. It is there but it gets easier somehow.
We are trying to get to the bottom of his eye issues. They are drooping and basically all tests are normal. He had neurological testing last week and there is some nerve damage in his feet from the chemo but the eyes are good. So we are looking into cosmetic surgery to lift the lids.
I am trying really hard to help Cody in the social world. He has been out of it for a long time and it takes time getting that back. He commutes to school so that does not always lend itself to the best of friendships. It will come, I know. I help where I can. Time...
Please keep my friend's niece in your prayers. She is battling a rare form of bone cancer and getting some strong chemo. She is a sweet girl and having a very tough time. Add Meghan to your prayers. Thank you.
For now, Happy New Year. Stay strong and healthy my friends. Don't forget to add Casey to your prayers too, he deploys again in the upcoming weeks.
We are trying to get to the bottom of his eye issues. They are drooping and basically all tests are normal. He had neurological testing last week and there is some nerve damage in his feet from the chemo but the eyes are good. So we are looking into cosmetic surgery to lift the lids.
I am trying really hard to help Cody in the social world. He has been out of it for a long time and it takes time getting that back. He commutes to school so that does not always lend itself to the best of friendships. It will come, I know. I help where I can. Time...
Please keep my friend's niece in your prayers. She is battling a rare form of bone cancer and getting some strong chemo. She is a sweet girl and having a very tough time. Add Meghan to your prayers. Thank you.
For now, Happy New Year. Stay strong and healthy my friends. Don't forget to add Casey to your prayers too, he deploys again in the upcoming weeks.
Friday, December 14, 2012
4 years, Dec. 14. 2012
I cannot begin to explain this feeling I have. I woke you up this morning to see a HUGE smile on Cody's face. Four years ago we spent this day at Huntington hospital only to end up at Schneider's with a leukemia diagnosis. This past year has been a good one for Cody. I do not think there have been any overnight hospital stays and Cody has been gaining weight. I think our biggest concern is the drooping eyelids which bothers Cody a lot. We are on the path to getting this fixed. The school year has been a much better one for you and I am pretty confident he did good this semester. Unfortunately there has been a huge tragedy here in CT. A gunman went into a school and killed a large number of kids and teachers. It is unbelievable. Very scary and sad to say the least. My heart hurts for the families and teachers affected.
With that, I leave this blog with Cody's facebook post: 4 years ago today i was told that i has leukemia. And to think it would lead to a stem cell transplant, feeding tubes, brain swelling, and make my blood type change is crazy! 4 years strong and Im gonna make it 100 more!!!
With that, I leave this blog with Cody's facebook post: 4 years ago today i was told that i has leukemia. And to think it would lead to a stem cell transplant, feeding tubes, brain swelling, and make my blood type change is crazy! 4 years strong and Im gonna make it 100 more!!!
Monday, October 15, 2012
Monday, September 17, 2012
September 17, 2012
Good morning. It is so nice to have a 4 day weekend. The schools close here for the Jewish holidays.
Thinking of all my friends that celebrate.
We started off the school year on a good note. It has been very busy but Cody seems to like his classes. Well, most of them anyway.
We were looking forward to the 4 day weekend. I persuaded Cody to come to a fair with me and "That 70's Band" was playing. Those who know me, know I love this band! It was a beautiful day and I was looking forward to just sitting out by the beach and relaxing. We got the fair and Cody ate sausage and peppers and a funnel cake. About an hour later, we were heading to where the band was and he said he felt nauseous. He was sitting on the beach and felt sick every time he stood up. He asked for my help to stand so I knew he felt weak and was most likely showing signs of being dehydrated. So I got him a water and a Sprite. He drank some water but said he could not make it to the car and that he needed to go to the hospital. He knows his body so well and he knew he was dehydrated or else the food made him sick. So I told the guy in the Beach Hut that we needed an ambulance. He called and in a few minutes one was there. They loaded Cody up and pushed him through the crowd to the ambulance. Once there, he vomited and it was a lot! He was really embarrassed and felt he let himself down. I went to get the car and made my way to the hospital. He was there when I got there and they were waiting to do bloodwork and to hook him to some fluids. We were at Good Sam in Islip. They were all nice there. We actually saw Joe from Spuntino there. His son had gotten a bump on his head. We were there till around 12, 4 hours later. Cody felt much better so we made our trip home. He asked to sleep in my bed so I know he was scared. It is always scary to me when we do bloodwork. His white count was elevated but not enough to alarm Sloan. So it is Monday and he is doing better. I know he needs to stay hydrated and drink more! He knows that too!
Thank goodness that was all it was.
Thinking of all my friends that celebrate.
We started off the school year on a good note. It has been very busy but Cody seems to like his classes. Well, most of them anyway.
We were looking forward to the 4 day weekend. I persuaded Cody to come to a fair with me and "That 70's Band" was playing. Those who know me, know I love this band! It was a beautiful day and I was looking forward to just sitting out by the beach and relaxing. We got the fair and Cody ate sausage and peppers and a funnel cake. About an hour later, we were heading to where the band was and he said he felt nauseous. He was sitting on the beach and felt sick every time he stood up. He asked for my help to stand so I knew he felt weak and was most likely showing signs of being dehydrated. So I got him a water and a Sprite. He drank some water but said he could not make it to the car and that he needed to go to the hospital. He knows his body so well and he knew he was dehydrated or else the food made him sick. So I told the guy in the Beach Hut that we needed an ambulance. He called and in a few minutes one was there. They loaded Cody up and pushed him through the crowd to the ambulance. Once there, he vomited and it was a lot! He was really embarrassed and felt he let himself down. I went to get the car and made my way to the hospital. He was there when I got there and they were waiting to do bloodwork and to hook him to some fluids. We were at Good Sam in Islip. They were all nice there. We actually saw Joe from Spuntino there. His son had gotten a bump on his head. We were there till around 12, 4 hours later. Cody felt much better so we made our trip home. He asked to sleep in my bed so I know he was scared. It is always scary to me when we do bloodwork. His white count was elevated but not enough to alarm Sloan. So it is Monday and he is doing better. I know he needs to stay hydrated and drink more! He knows that too!
Thank goodness that was all it was.
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