Tuesday, March 30, 2010

March 30, 2010


Tuesday-We got up early and went into Sloan. There was so much rain. We wanted to get in and out so we could get a nap in and be rested for the game tonight.
We talked about food and how frustrating we are so our doctor said he could try to start eating and see what happens. This is what the gastro dr said we could do. Conflicting stories makes this all confusing.
We both took a nap and were waiting to leave for the game. Cody checked his email and he then asked if he could ride the zamboni tonight at the game. Ann emailed both of us and asked him if he wanted to ride it before the game when they do the ice. He was so thrilled. We got there and did not know we would get to do a high five to the players. John Sim was out so as soon as he saw Cody he said "looks like we will have to put you on payroll now." He is a nice guy too. The players came out very focused and Cody said Richard's name when he passed. It took him a few steps and he turns around and yells "Cody" before he gets on the ice. It was so cool. Cody was beaming. He did the zamboni thing and he loved it. We found out seats and we were sitting in Jeff Picker's seats so his parents were there.
The Islanders lost and it was a tough loss. We went down to wait for Richard. A few of the players came out and said hi to Cody and then Gillies walks out comes to Cody with this autographed stick. He remembered yesterday when Cody bumped him and he thought he should say hi. It was cool. I do feel bad for the loss. Richard came out but was not in a good mood. I am sorry they lost.
We got home late and Cody was exhausted. It was a fun 2 days!!

March 29, 2010

Monday-We woke up after a restful night and got ourselves to the coliseum for the Islanders practice. Cody was so excited. It feels very good to be writing here and not have to include so much medical stuff. Anyway, we were the only ones in the coliseum. We sat next to where the players come out and they filtered out and Richard, his player saw Cody and shouted to both of us. We sat with Ann and watched the practice. It was a pretty intense practice since tomorrow night's game is against the Rangers. We saw Gillies, the new player teaching a few others how to do some holds in a fight. He is a fighter for sure. When the players left the ice, we got a few more autographs. Josh Bailey came and gave him another stick. Richard came out and yelled for Cody to come with him. I was left to get the autographs from the other players. Ann gave us a book and and a banner so I was trying to get it signed. Cody was nervous and stepped down and followed Richard into the locker room. I, of course, (darn!) could not hang out there so he went alone. He said later they he was talking to a few of the players, Biron (goalie), Frans Neilsen, Sean Bergenheim to name a few. He came out with this HUGE smile on and just could not stop smiling. He was speechless on the way home too. I think he had to let it all sink in. It was a fun morning and an unforgettable one.

Sunday, March 28, 2010

March 28, 2010

Sunday-Today was a day that I could have stayed in my pj's all day. We got out around lunch time and went to the mall. I needed to go to the apple store to have them look at my computer. Cody felt really good and was up a few times during the night but did well without immodium today. I am taking a close look at all his meds and doing research here online just to make sure nothing was overlooked as far as side effects and reactions with other meds goes. Just want to see if I can find anything. You never know.
It is getting frustrated here with eating. Cody wants to eat more which is a good sign but he is so limited. I said he needs to let the drs know he is getting fed up. It is so hard to keep saying no to him when it comes to food too.
Tomorrow we are going to the Isles practice so he is very excited about that.
Catch u tomorrow...

March

March

March

Saturday, March 27, 2010

march 27, 2010

Saturday-We made it to the Fireman/Police hockey game. Cody had a good time and did well other than a few cramps here and there. He was hungry and it was hard for him not to eat. He did try an egg before we went but he was really hungry today. The firemen won, and I am pretty sure Craig was happy. It was a long day and I was pooped. We got home and Cody ate some potatoes and then his snacks. The Islanders played tonight so we watched a little. Actually Cody went to bed and I watched it. I cannot wait to go to bed and just have a day to relax, hopefully tomorrow. Have a great Sunday everyone...oxoxoxox