day 86 August 30, 2009

Sunday-another lazy day but once the weather broke we decided to get out. We took a ride and went to try mini golf over in Deer Park. It was a nice place with stairs and hills but Cody did the whole course well. It would have been nice to go out to lunch but since he can't eat out we went to the grocery store. Cody picked out a ton of snacks. Not a good place to take him, he sorta went a little nuts with the junk food!! It is all good. We hung out this afternoon and then watched "Marley and Me." I cried my eyes out. Early night but a good day.

day 85 August 29 2009

Saturday-Today it was rainy and cloudy all day. We were kinda bored so we took a ride to West Neck beach. Cody drove the car in the parking lot. He cannot drive now due to the seizures and the anti seizure medicine so he just wanted to get a feel of it. On our way home, we got a call and one of Cody's friends and his dad came over for a visit. It was so good for Cody. He got tired and needed a nap then we watched a movie. It was a lazy day. All was good for a day with crappy weather.

day 84 August 28 2009

Friday- Clinic day. We went in the our appt and Cody still has diarrhea so trying to get to the bottom of this. He also is suffering from some kind of congestion so they cultured his throat. It is 9 pm and no call yet, so maybe all is negative. It is possible that Cody can develop allergies from the cord blood, weird I know. It is also possible that he can be getting the diarrhea from the medication.

Today we both napped, it was that kind of day. Cody thanked me today for taking care of him through all this. Well, that was all I needed to hear. Amazing.

He did eat better today so that makes me feel good.

Have a great weekend everyone.

day 83 August 27, 2009

Thursday-Today we woke up and waited for our phone call from Casey. I had a rough night but will get through this too. I know we will be busy so hopefully time goes by fast for us and for Casey.

We got the call and said our goodbye's and now Cody is playing XBox Live with him. I just heard him give him some advice. He told his brother not to eat yellow snow and not to eat gum stuck on railings. Now that's love!!!

It was a quiet day for us.

Day 82 August 26 2009

Wednesday-Well, today was an emotional one. I went back to school and to my classroom for the first time since December. I met the teacher that is replacing me and looked around my room. I am so lucky they are holding it for me. I will miss not going back but I know I will be busy here with Cody and making sure he is better.

He is doing well. The drs called to say he cleared the virus so that is good and his last EEG was normal. Once again, good news. He is still not eating as well as he was and has diarrhea so will follow up with that tomorrow. He played bocci ball on the neighbor's new court yesterday. He did pretty well.

We got the call from Casey and will say goodbye to him tomorrow. So upsetting. Continue to keep him close at heart.

Day 81 August 25, 2009

Tuesday-We had a good visit at Sloan today.We were there for a little while because Cody got the antibiotic he gets every 2 weeks for a certain type of pnuemonia. His sodium is a little low so we are working on that. He lost some weight so we are continuing with the IV nutrition that he gets overnight. Our regular doctor is away until Tuesday so we will talk more with her. We head back on Friday. I am still a little concerned with Cody being so tired but all seems 'normal'.

Today is the 4th year anniversary for the passing of our little angel Tyler. My thoughts are with him and his family on this day. We miss you Tyler.

day 80, August 24, 2009

Monday-Today you started physical therapy with Darren. You did really well and were worn out. You asked your car guy to come help you with your car and you could barely stay up! I am thinking you may need blood. We will know tomorrow.

It is going to be an emotional week for me, I know. Casey goes this week. Please continue to keep him in your prayers too. Thank you...