January 18, 2011

Tuesday-So the night was ok until Cody woke up. He had so much pain medication that he did not wake up for the bathroom. He was pretty embarrassed. In a way, that is good. The fact that he felt embarrassed makes me think he is so much better. I keep telling him that we are not here for the chronic issues he had before, no line infection and not here for diarrhea and/or vomiting.

They took him for procedure around 12 today. He came through it with flying colors but with lots of pain when he urinates. The good news is that the fistula is not connected to his bladder. Great news, actually. Still perplexed as to what this is but doing more viral studies. The course of action is fluids which he is getting lots of and pain management while we see if any viruses come back. He felt good other than the excruciating pain when he pees. He even ate an ice cream tonight! Hoping to get the good word to go home tomorrow or the next day.

january 17, 2011

Monday-Waiting for the drs to come and decide what the plan is. So this could be a virus, 2 different ones are being tested for, it could be that fistula causing problems, or it could be something with his bladder. So tomorrow he is going in at 10ish for a cystoscopy (If I spelled that right) where they go in through the penis and look into the bladder with a camera. Good thing he will be put out. We have not heard anything yet on the cultures and will see if they biopsy the bladder tomorrow. Today, no pain and pressure. Hopefully we will get to the bottom of this tomorrow.

January 16, 2011

Sunday-SO today was pretty good. We took it easy so we could feel strong enough to go to the hockey game tomorrow. Weird because at the same time, around 6 pm his cramping started and he had a 99.7 temp. They do not consider it a fever until he is 100.4. But then again, a fever can be masked when you are on steroids. So I called in and the fellow was not too helpful. It took an hour for her to call back. She said we did not need to come in but I was trying to convince her that we had had enough. I emailed our dr and she said to plan to come into clinic on Monday morning. I hung up the phone and Cody walks out of his room doubled over and crying in pain. SO I called her back and said we were on our way. It was another painful and scary ride with Cody crying. It honestly sounded like he was having a baby. Pretty scary. He was squeezing my hand so hard I thought it would break. We got here and got more pain meds and he calmed down. We agreed to be admitted. We got up to the floor around 1 am. ANother long night.

January 15, 2010

Saturday-We had a quiet day. We rested for most it and we were hoping with the new anti spasmotic meds and the 24 hour fluids to kick it. The cramps came this evening but we were able to curb it and was able to settle down. He slept through the night.

january 14, 2011

Friday-Well, we tried to sleep and hoped for the best. But at the same time, the pain began and we went back to Sloan. A CAT scan was ordered at midnight and it showed us an inflammation of the bladder. There is some concern for the fistula and did it tunnel through to his bladder. They are thinking this is not the case but it could be. Hoping not. We got home at 4 am and it would be a long day of rest for both of us.

January 12, 2011

I tried to sleep on and off today and if you are not used to sleeping in the day, it was difficult. I was feeling like I might have a sinus infection so I decided to go to one of the emergency care places and sure enough, I do. So my head is full and achy and I cannot stop sneezing. Antibiotics, nose spray and mucinex for me.

Cody was fine, ate, went grocery shopping with me and we were settling in to watch a movie. He started with the pressure pain and tried to just relax and sleep. Well, it got increasingly worse and we went back to Sloan around 8pm. It was a really tough ride. He was crying in pain the whole way there and was really losing it. I felt awful and it made for a scary ride. Thank God there was no traffic and he had asked for pain meds so by the time we got there, the pain was subsiding. He was still doing the little pees and we did the fluids again. We went for a CAT scan at 12;15 and thank goodness that were was no obstruction. His bladder and urethra are swollen. They gave us anti spasmodic in case this happens again. They think it is all from the infection. Let's hope that does not happen again...he was really scared too. Thanks to Cody's uncle Jim who met us there after I called him. I asked him to go there to meet us so they would know it was an emergency.

January 11, 2011

It was a pretty good day until the evening. Cody told me that he was only urinating a little bit. He said it was hard to go and only a little was coming out. We were on the phone and trying to figure out what to do. We were about to go to the hockey game and he was not feeling so great. Drs wanted us to measure what was coming out. We threw the urinal to measure in a backpack and after he was so upset, we thought we would just sit there and wait till 11 like the drs said to see how much he put out. Once at the game into the first period, he was just too uncomfortable and said we should go to SLoan. So we drove back home to get some things and off we went. His urine showed a urinary tract infection and they gave him fluids and he was able to urinate. Needless to say we got home at 3 am and I had to call in sick for Friday.