Decmeber 13, 2010

Monday-Good day back. We found out that Cody's toe that was infecting grew bacteria so it was treated with antibiotics. He feels good and is eating. Today he got himself up, showered and cooked his lunch. He needs to start doing that and to be independent. I am proud of him. Tomorrow is his biopsy for his bone marrow and skin. He is going with his dad and he will be fine.

It is 2 years today that we got this horrible diagnosis. It is actually tomorrow but this was the day, Monday, 2 yrs ago that we started at Schneider's with all this. Hard to believe.

December 12, 2010

Sunday-Terrible weather today for sure! We stayed in all day and enjoyed a day of nothing! Cody feels really good so looks like I am on track for tomorrow. All is good in the fort.

December 11, 2010

Saturday-We took it easy today and Cody ate three meals. We did not run his feeds last night but instead did pedialyte. He was hungry. And everything stayed down so all looking good. We went to the hockey game and we were in the 2nd row! Great seats!! Cody's friend and his dad sat with us. We gave our tix to one of his teachers so they came and sat with us too. The arena was not filled with this losing Islander track. It was a great game but sad they lost.

December 10, 2010

Friday- We got home around 5 today. So exhausted. Got situated here at home and went to bed. No more episodes for Cody, thank goodness. Happy weekend.

December 9, 2010

Thursday-another good day that did not end so well. Cody met with his tutor briefly and felt fine. We went to eat at Friday's and then came home to watch the hockey game. He was feeling nauseous and then ended up vomiting. This was just the start of it. He vomited again with a watery stool around 12. I called the drs and they had me give him a stress dose of steroids at home. It should have done the trick but then he vomited and had diarrhea again and he told me that we needed to come in. This was around 2 am. He was crying and it broke my heart. He kept saying he did not want me to miss work. His dad was here and could have brought him but after it being already 2ish and then how could I focus at work and be worrying about him? It was a no brainer for me. Hey, I got a paycheck and 9 good days. This is just a little setback. We got to Sloan and stayed in Urgent Care till 8 am and I managed to crawl into the tiny bed, a bit bigger than a stretcher but got little sleep. We came up to the day hospital for evaluation. We needed to stay to get some IV fluids and another stress dose of steroids. It is 12 noon now and we are still here but should be able to go home soon.

We got home at 5ish. We ran to get meds and pedialyte and I need to catch up on my sleep now. They are going to do a skin biopsy on Tuesday to check the rashes and skin irritations he keeps getting. It could be GVHD and maybe we need to treat it differently. They will also do a bone marrow biopsy since he is due. I will not be going with him for this one, I will be working. He says he is ok going with his dad. He is a strong boy. I am hoping for a good night here tonight. Night all...

December 8, 2010

Wednesday-Pretty good day. Cody had his tutor and then we went to a board meeting for a foundation that has been helping us. It is called "Contractors For Kids". Cody and I want to give back and we want to help. We sat with board members and guests and there are a few things we want to get involved with. We will do our best. We have some ideas. It was good going there and seeing everyone.

December 7, 2010

Tuesday-Long day for Cody. He was at Sloan with his dad and then they stayed in the city for lunch and then he got home around 6. Changes in skin meds and he is having some dry skin issues. I personally think he inherited sensitive skin from his cord blood. It is not GVHD but Cody worries like crazy that it is. We will start new creams tonight. He is on another antibiotic for an infected finger and a urinary tract infection. That should kick both rather quickly.

Pretty good day for me too...oxoxox