day 125 October 7, 2009

Wednesday-Today we decided to go to the mall. It was windy out and we took a stroll in the mall. We hit the two big stores. I am telling you this because when we got home, Cody had a bad headache. Any little thing worries me! I was thinking it could be from the wind or perfumes in the store. Anyway he basically slept all day. Or could it be he just needed a catch up day? He woke up for a little while but was back in bed early.

day 124 October 6, 2009

Tuesday-GREAT day! We got super results today. The diarrhea is caused from a bacteria of unknown origin. It is not GVHD!!! We are cutting back on meds and not adding any for the diarrhea. We will see how he does, as Cody and I think he is getting better with it. We are VERY happy with these results. We went to the soccer game and they won again (undefeated!).

Good day for us and I hope for you too. Thanks for all the prayers. There is some power coming from them. Someone is looking down on us from above. Thank goodness.

Day 123 October 5, 2009

Monday-We had a pretty good day. We got a few things done with the car and then Cody had Spanish today. He was worried about it but he did pretty well. We went to the mall to get his finger sized. He wants a ring. We decided to take a stroll and while we were walking, he put his arm around me. He is just so happy with life. He said he loved me and is just happy. I know these are all good signs. I got a visit from Mary Picarello and Kevin. We kinda just hung in the driveway as to keep Kevin away from Cody. Have to be careful until Cody gets his shots.

We head in tomorrow morning and we will be discussing any new findings and what our course of action will be. Wish us luck.

Day 122 October 4, 2009

Sunday-It was a beautiful morning. We woke up feeling kinda empty. Casey did call us during the night and he was unclear but I think they lost a man. I know there is something going on but I try to avoid that part of the news. We were very lazy today and enjoyed just hanging out. A friend came over to help me do a little bathroom work, we went to get ices and that was our Sunday. Isn't that what Sunday is about?

day 121 October 3, 2009

Saturday-Today Casey turned 19. We were hoping to hear from him last night but did not. Cody slept VERY well and did not wake up for the diarrhea at all. We found out today that it was not over but at least it seemed like we could control it so he can enjoy some things. We had a busy morning with Xena's return (THANKS MOIRA!!!), the nurse and the cleaning guys were here. We went to HSE's homecoming game today. They won! Cody got to sit and chat with some friends and it was so good to see him doing that. He did have a hard time sitting and used me as his "recliner" but he enjoyed himself. It started to rain in the last 5 minutes. We came home, he took his bath and ate a few bites of soup. He came over to me and just hugged me. He said "I don't know what it is, but I feel really good". He then sat on my lap and we just hugged. There is that special spirit I have made reference to before.

day 119 October 1, 2009

Thursday-We had a rough night of several bathroom visits and little sleep. We were told we would go at 4 but lo and behold, they came for us at 11:30. Cody was in the procedure room at 1:00. He was upbeat going in. We heard about an hour and 15 minutes later that they did several biopsies on inflamed areas of his stomach, colon and intestines. It was not a horrible looking outsome but something is wrong. We will know from the biopsies whether it is an infection, virus or gvhd-graft vs host disease, the rejection. Once we know, we will begin proper treatment. When we talked with the doctor, she and I both agreed it was best to stay here tonight. It was 5:30 and one more night here would not be a bad idea. Well, this did not sit well with Cody and he was very upset....with me. He cried and was being short with me. Once he settled down, he apologized and it took all I could to get it out but I told him I know he is scared and I know I am the one he takes everything out on and it is ok. He cried and asked me not to cry but it was hard. I made sure he knew it was ok to cry. In a way, I am glad he cried and that he saw me cry.

Now we have to wait until tomorrow or most likely Monday. We'll keep praying and he will keep fighting. He has to win this.

day 118 September 30, 2009

Wednesday-today was a long day of waiting and frustration. We were told the procedures, endoscopy and colonoscopy would be at 11. Then we were told at 1 then we were told in the afternoon. We got called to come down around 5 and finally at 7pm, they canceled us due to an emergency. A day of no eating and drinking and frustration. Cody was not a happy camper and I cannot blame him.