day 93 September 6, 2009

Sunday- Today was a busy day and we woke up and were bored. I looked online for something to do outside and in a not so crowded area. I found a field hockey game at Hofstra. We went to that, came home and Cody took a nap then went to Nicole's house for a bbq. I feel bad because Cody really wants to eat but just can't. He will tell you that is hard to explain. He likes being around everyone and has a good time but just can't eat just yet.

We were home kinda late for starting his meds (IV ones) and he passed out right away.

Slept pretty well and bathroom trips appear to be decreasing.

Day 92 September 5, 2009

Saturday- Today our cleaning guys came back and that was much needed. They do a great job!!

We ran a few errands today and got some movies. With Cody's stomach acting up, it is kinda hard to do all that much. It seems to be getting under control but just in case.

day 91 September 4, 2009

Friday-Today was a very busy day. We started off at our appt nice and early. It was very productive and all was good. We are increasing his med for diarrhea and hopefully that will work. On the way home, Cody got a pair of those sneaker/shoes out that are for improving circulation. MBT's I think they are called. His dad has them and was with us and got them for him. We then got to see Nicole and we went to mini golf with her. It is one of the things Cody can do and likes to do. Then we went to get pizza at the beach in Northport with Nicole and her parents. I thought it might be too much for one day, but Cody did it. We took our IV bag with us. He did not eat and had diarrhea a few times but he was a trooper. He could not keep his eyes open on the ride home but he did it. It was a full day, probably the most he has done in a long time. I am proud of him.

Something you may have forgotten but in honor of our favorite soldier that is away, you can tie a yellow ribbon around a tree for him.

Also September is Pediatric Cancer AwarenessMonth. The color is yellow too.

day 90 September 3 2009

Thursday-We stayed close to home today and are enjoying it.

Today my teacher friends had their day back and it was def weird for me not going. Definitely. I thought about them all day. In time, I will be back. I think I just want it to be normal again.

All is the same here. Still dealing with diarrhea and hoping it subsides soon.

Day 89 September2, 2009

Today was better but still dealing with diarrhea. It was a lazy day. I think I feel kinda bummed and it is because, yes, I miss work. It is an exciting time of the year and I do miss setting it all up. The teachers go back tomorrow and it is always nice to see everyone again. I know I will get there. And I need it.

We hung around all day and then we to watch soccer again. We did not stay too long tonight but it was good to get out.

The bandage stuff is bugging us and frustrating. I called 2x today and maybe on Friday they will stitch it back up for us. Nice day overall.

day 88 September 1, 2009

Tuesday- the morning did not start out too well. The diarrhea is rough. It was messy this morning and actually we both got upset. We headed into Sloan, and I was not sure we would make it. Last night his stitches came out, the ones that hold the port in so I was nervous about that. The visit was good, we are dropping some meds and were are taking Immodium for the diarrhea. The doctor is worried about his coughing and sinus issues so we have lots to do for that. Next week we do another MRI and a biopsy. The port was taped in and it will get switched on the 14th. It is a lot for the next 2 weeks. I just keep thinking what if I was working? No way could I focus on either job.

We made it to watch the soccer tryouts again. Good to see the boys. The coaches are amazing!

We were both in bed pretty early as we started so early.

day 87 August 31, 2009

Monday-We had a busy day. We went to physical therapy and then went to watch the soccer tryouts. It was very touching and emotional to see the 4 coaches come out and actually hug Cody. They said they were soooo glad he was there. And I know they meant it.

We watched for a little while and headed home. It is hard to see Cody being a spectator to all the things he loves and not engaged in them. I know he is thinking too but he does well.

He has come a long way and I am proud of him but it is hard for sure.